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Stroke and Brain Injury Healthcare Resources and Support Groups

The following resources, associations, and support groups are excellent sources of information about stroke, brain injury, vision loss, and related topics. They can also provide valuable support to those who care for the survivors of stroke and brain injury.

Stroke and Brain Injury Support Groups

Hope for Stroke

button_visitA website devoted to helping stroke survivors and caregivers find beneficial information on support and recovery.

The Internet Stroke Center

button_visitAn independent online resource for information on stroke care and research.

The Caregiver Online Support Group

button_visitAn online support group for families, partners, and other caregivers of adults with disorders such as stroke, brain injury, and Alzheimer’s.

Associations – Brain Injury and Stroke

American Stroke Association (ASA)

button_visitMultimedia library, information, and support for the treatment and prevention of stroke.

Brain Injury Association of America (BIAA)

button_visitBrain injury prevention, research, and advocacy for healthcare professionals and patients, with a special section for children. Resources include a guide to brain injury rehabilitation programs. In English and Spanish.

Centre for Neuro Skills (CNS)

button_visitTraumatic brain injury resource guide that provides information about treatment, services, and products related to traumatic brain injury (TBI), brain injury recovery, and post-acute rehabilitation. In English and Spanish.

The Goddess Fund

button_visitWebsite dedicated to providing stroke support, education and research in women.

National Institute of Neurological Disorders and Stroke (NINDS)

button_visitInformation on disorders of the brain and nervous system as well as biomedical research, initiatives, and clinical trials funded for their treatment and prevention.

National Stroke Association (NSA)

button_visitStroke risk factors, treatment, and prevention, plus a guide for patients and physicians on talking to your doctor about stroke. In English, French, and Spanish.

Associations – Neurological

American Neurological Association (ANA)

button_visitClinical publications, member resources, and information for students, residents, and fellows, plus academic job listings and candidate proposals.

American Society of Neurorehabilitation (ASNR)

button_visitMember database, events calendar, and useful government and medical links, plus certification information.

North-American Neuro-Ophthalmology Society (NANOS)

button_visitPhysician referral and patient information on neuro-ophthalmic disorders from migraine to thyroid eye disease. Professional resources include online journal links, meeting information, and an email discussion list.

Associations – Other Medical

American Heart Association (AHA)

button_visitNews, publications, and articles about heart disease, stroke, and treatment resources for patients, families, and researchers – plus healthy lifestyle tools, training, and advocacy.

American Medical Association (AMA)

button_visitIncludes both free and members-only resources for patients and physicians on medical education, policy, and important healthcare issues.

Centers for Disease Control (CDC)

button_visitA clearinghouse of information from the principal federal agency for health and safety. Resources include data and statistics, information on health topics, and publications and software available for download.

National Center for Health Statistics (NCHS)

button_visitComprehensive national health data collected through public records and private interviews from the nation’s leading monitor of trends in health and healthcare.

National Institutes of Health (NIH)

button_visitHealth information, grant and funding opportunities, and scientific resources from the world’s foremost medical research center, comprising 27 centers and institutes.

U.S. Food and Drug Administration (FDA)

button_visitCompendium of resources – including searchable databases – for consumers, healthcare professionals, and administrators. Contains information on hundreds of FDA-regulated products, from prescription and generic drugs to food, medical devices, and cosmetics. In English and Spanish.

Associations – Vision

American Optometric Association (AOA)

button_visitExtensive clinical and member resources. Includes news and facts for patients on eye disease, children’s vision, contact lenses, nutrition, and general vision, as well as a downloadable eye test and other services.

The Association for Research in Vision and Ophthalmology (ARVO)

button_visitContains both patient and members-only links; online abstracts, newsletters and journals; and details on grants, fellowships, and awards for outstanding vision research.

Rehabilitation Resources

National Rehabilitation Information Center (NARIC)

button_visitProvides disability and rehabilitation information organized in a variety of formats designed to make it easy for users to search for and locate the topics they’re interested in.